Working with uncertainty

Perhaps the greatest emotional problems from a blood cancer diagnosis arise from uncertainty. Often that uncertainty can precede a diagnosis, for months and sometimes years,

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Six months post SCT

Autumn, the leaves are falling. The intense heat of the summer has faded, the rain has come at last, and the landscape is green once

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A year with MDS

By a strange coincidence, on the first anniversary of when I was admitted to Pinderfields Hospital with a nosebleed that was the first indication that

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Recovery

I arrived home last Wednesday, with a bag of medications. Rather than do a daily blog, which felt appropriate in the hospital, I will update

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Wonky Blood

My daughter explained to my grandson, now just turned 8, that the reason people have had to be careful with me of late and why

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Transplant conditioning

Here I am, just four months after the referral to St James’s, admitted for a stem cell transplant. In preparation we isolated (my wife and

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In praise of Yin Yoga

I got hooked on Yin Yoga some time ago. I did a few classes out of curiousity and felt the benefit in very different ways

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Transplant – first steps

After our initial meeting with the transplant consultant mid December, things went quiet for some time. We were aware it would take over six weeks

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The Numbers Game

It’s very easy to get sucked into the numbers that are shared in relation to MDS. As a mathematician who worked in healthcare informatics for

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It is not just about me

It is challenging to have a cancer diagnosis, but … I wasn’t desperately shocked by the initial diagnosis of MDS, though I had a real

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Donor found

Last Friday I got a call to say that a fully matched, unrelated stem-cell donor has been found and is willing to donate stem cells.

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Keeping Fit

I was anything but a fitness junkie, but I was very active before my MDS diagnosis. My wife and I went ballroom and sequence dancing

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Emotions

A diagnosis like MDS will trigger many emotions, for you and for everyone who knows you and hears. Here I will comment primarily on my

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Stem Cell Transplant

A stem cell transplant is a treatment that is used in many blood cancers, and is often the only cure (as with MDS). About 4,000

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A Whole New World

On the Monday following my discharge from Pinderfields we (my wife and I) arrived at the Cavell unit at Dewsbury hospital. There was a small

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My Diagnosis

On 9th September 2025 I started with a nosebleed, something not unusual as I was recovering from a bad cold, but this time it continued

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